This time for sixteen-year-old Radek Buček from Slavonice! Radek was born with a rare genetic defect - it is an incurable disease called Angelman syndrome or lucky child syndrome. A child with this disease requires special care, which is demanding and exhausting. Radek is fully wheelchair-bound, does not walk, does not speak, suffers from epilepsy, has behavioral problems and is monitored by many specialized doctors. He is completely dependent on the round-the-clock care provided by his mother.
After a major and demanding hip surgery, Radka will face a long-term recovery and intensive rehabilitation. The family would use the money raised to pay for physiotherapy and necessary procedures that will be recommended for them after the surgery.
You can register for the 9th annual Czech Canada Run now at www.irontime.cz/prihlaska3171.
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